Coping of Fathers of Children and Adolescents With Rare Disease – Cystic Fibrosis
Abstract
RESEARCH OBJECTIVE: To characterize a coping of fathers of children and adolecscents with rare disease – cystic fibrosis (CF) and its socioeconomic determinants.
THE RESEARCH PROBLEM AND METHODS: What types of coping strategies measured by the COPE Inventory are used by the surveyed fathers of children and adolescents with CF compared to the men from comparison group? The study of 67 fathers of children and adolescents with CF was conducted using the diagnostic survey method with the COPE inventory for Measuring Coping with Stress Ch.S. Carver in the Polish adaptation and a short survey questionnaire for fathers. The comparison group consists of healthy men-the results were taken from the validation procedure of the COPE Inventory.
THE PROCESS OF ARGUMENTATION: There are a number of reports in the literature indicating disproportions in the participation in psycho-pedagogical research of mothers and fathers of children with chronic illness and disability. The noticeable tendency to increase interest in the scientific community in the analysis of coping strategies and their determinants in fathers of children with CF became an inspiration to undertake exploration in the discussed area.
RESEARCH RESULTS: Fathers of children and adolescents with CF obtained significantly lower results in the following strategies: planning, instrumental and emotional support and positive reappraisal, as well as significantly higher intensity of acceptance strategies compared to validation data of healthy men. The respondents use strategies of denial, cessation of activities and the use of alcohol or other psychoactive substances significantly more often than those in the validation group.
CONCLUSIONS, RECOMMENDATIONS AND APPLICABLE VALLUE OF RESEARCH: The results of our own research may constitute a premise for the specification of psychosocial assistance addressed to fathers of children with CF and an inspiration to deepen the search for correlates of the coping variable in the discussed population.
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